How I lost my child to sickle cell anaemia – Gov. Okowa’s wife


The Delta State First Lady, Dame Edith Okowa, has recounted how she lost her child to sickle cell anaemia at seventeen months old.

Mrs. Okowa shared the sad tale at a side event on sickle cell anaemia awareness forum with the theme “Sickle Cell Disorder, the forgotten and the neglected: Any hope for the children?” organised by O5 Initiative, her Non-Governmental Charity Organisation and pet project at of the ongoing 74th UN General Assembly.

She said, “You may wonder why I am interested in sickle cell anaemia and not cancer, heart condition etc, but I tell you, what you suffer is what you are going to look for a cure.

“I had a first-hand experience of sickle cell anaemia. I had twins as my first issue and I lost one of them due to sickle cell anaemia at age one year, five months and since then it has been a journey.

“I told myself since I have gone through this, no woman should go through the same. That is why I have embarked on educating people to know about their genotype.

“My heartbeat is about sickle cell anaemia, the point is a couple should know their genotype before marriage. Love is good, but when the chips are down that love might not carry it.”

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